July 2, 2012. 

Originally we were going to be in Boston today for Mom's scans, biopsies, etc.  I can't say I am sorry that did not work out. Having things done locally sure makes this easier on some levels, but then I have to wonder if things may have gone smoother in a bigger, more cancer oriented hospital. We sure put up with a lot of incompetence with the local place but I really do believe that was due to so many interns having a say in Mom's care. IF we have a next time, there will not be any interns working with her. Especially ones who barely speak English and are totally and completely clueless as to what tests, etc Mom had done. I find it more than a little alarming that I knew more about Mom's condition and results than someone who is allegedly a "Doctor". 

Tomorrow is the second chemo infusion. We will be going to the doctor's office/infusion clinic for this. Mom has not had any major issues with the first infusion but chemo is cumulative, building up in the system with each treatment so I am not sure what to expect this time. I am hoping that things go smoothly and she can remain feeling good. The only problems she has had is a bit of constipation and some fatigue. Both relatively minor in the bigger picture. 

Speaking of the constipation. One new word of advice for anyone beginning this cancer/chemo journey. Mom's doctor recommended that she have both an anti-diarrhea medication as well as a stool softener on hand after the first chemo. I bought her "Colace" stool softener tablets and a store brand Immodium. I recommend having these in the house as soon as possible when beginning chemo. Mom was so grateful that I had gone out and had those ready for her.

 This is completely "on the job training" for me and that's why I am writing about it and sharing my story as we go along. I figure I may be able to help someone else along the way and that's always been my mission throughout my advocacy work. The above tip being proof that there is still much to be learned for me and I will continue to share the things I encounter as this journey continues.

 

One final thought for today.. I decided that I would be prepared in the event that Mom does lose her hair. I ordered her 2 head wraps which I will keep here with me until/unless she needs them.  One of the wraps I bought and one was through an amazing site that gives  one free wrap to newly diagnosed cancer patients...

www.headcovers.com is just one of many sites on the internet that you can find really nice headcovers, wigs and hats.

And to receive a free head scarf I found this link:

http://www.goodwishesscarves.org/good_wishes_scarves.php

In closing:

Dear Cancer.. You will NOT break my spirit nor will you break my Mom's. You might as well just give up and step off because I refuse to back down from this fight.

~Christine.